Between December 2013 and January 2014, seven seminars took place in the countries participating in the HoNCAB project with at least one hospital: Austria, France, Greece, Hungary, Italy, Malta and Slovenia.
The seminars were conducted by the HoNCAB coordinator (Azienda Ospedaliera Universitaria Integrata of Verona) and were part of the planned activities of the work package 4, whose objective is to set up a database for data collection and entry of cross-border patients’ information according to pre-defined variables.
During the seminars, the following topics were approached:
- How to produce a proper Dataset;
- How to use the dedicated tool (i.e. Web Based Application) for safe data transfer among EU countries;
- Suggestions on how to positively involve eligible patients.
These meetings also represented an opportunity for partners from different countries to exchange experiences and issues related to cross-border care.
A total of 94 participants from 14 hospitals and two institutions attended these seminars, of which six are already members of the HoNCAB Hospital Network.
More specifically, each seminar was composed of three modules:
- 1st Module: introduction to the HoNCAB Project and Directive 2011/24/UE;
- 2nd Module: introduction on how to collect data from local databases and how to transmit them using the HoNCAB Web Based Application;
- 3rd Module: presentation of the HoNCAB Research Protocol and suggestions on patients’ enrolment.
The data collection process will start in April, as soon as each partner will achieve the Ethical Committee approval of its own institution.
Data collection will be composed of:
- A dataset extracted from local databases: it will contain socio-demographic, economic and treatment related variables
- Two questionnaires: the first one to be filled in by each enrolled patient and collecting information about the quality of treatment received and the reason for the decision to seek treatment abroad; the second one, to be completed by patients who claim reimbursement (according with Directive 2011/24/UE) from their National Health or Insurance System of affiliation, poses questions related to their satisfaction and outcome of the refund procedures.